Director, Patient Advocacy And Rare Disease Engagement

The RoleModerna is seeking a Director of Patient Advocacy and Rare Disease Engagement, based in Cambridge, MA, to lead the development and execution of a comprehensive Patient Advocacy Strategy across our rare disease portfolio. This role will develop relationships with Patient Advocacy organizations and KOLs to advance patient care initiatives. As an advocate for the patient voice, this individual will collaborate with cross-functional teams, including R&D, Commercial, Government Affairs, and Communications, to integrate patient insights into our enterprise-wide programs and business objectives. Additionally, the Director will play a pivotal role in shaping healthcare policy by engaging patient groups in discussions with regulatory authorities, government bodies, and health technology assessment groups, ensuring the patient perspective remains central to decision-making processes. The role will also conduct scientific exchange with prioritized HCPs.Here's What You'll DoDevelop and implement a global Patient Advocacy strategy from clinical stage to market for Moderna and lead its successful execution. Lead the strategy across our global markets, ensuring alignment with local teams and leveraging regional insights and relationships.Drive, build, and enhance strategic alliances with national and global Patient Advocacy Groups that have a strong interest in rare disease policy through touch bases and other authentic engagements. This includes mapping key patients and rare disease groups in key markets and building relationships that enables progressing critical business objectives and improve patient care. It is important that this role take a global view of patient advocacy and rapidly expand its impact outside the US.Engage with scientific societies, patient advocacy groups, and councils to build agreement around treatment guidelines and advocate for updates where necessary.Represent Moderna at key Patient Advocacy Conferences and symposia, at national and international scientific congresses in order to progress partnerships that support better patient care.Develop and execute Patient Advisory Boards, Patient Leadership Councils and other forums in support of critical objectives pertaining to better understanding the patient true unmet need, gathering insights, supporting the amplification of the patient voice and ultimately, enabling Moderna to become embedded in the rare disease communities and ecosystem to better support patients and external stakeholders.Work with the government relations, regulatory and access teams to facilitate engagement of patients' groups with regulatory authorities, government and health technology assessment groups to ensure that patient perspective is at the center of all decisions.Collaborate with government relations to develop policy strategies and advocacy papers that support enhanced patient care and lead their execution.Ensure patient materials are impactful and resonate with the community by incorporating feedback from patient advisory groups.Represent the voice of independent patient communities within Moderna, ensuring these perspectives shape the rare disease pipeline and related decisions. Stay abreast of the latest trends and thought leader insights in patient advocacy, integrating new ideas into Moderna's patient engagement programs.Partner with though leaders to amplify impact on patient care and achieve business objectives.Manage the Patient Advocacy budget and manage relationships with external partners or agencies.Conduct scientific exchange with HCPs in the US to support education and gather insights regarding rare diseases.Collaborate with HR and communications teams to create patient-centric materials and initiatives that raise disease awareness and connect employees to the patient journey.Here's What You'll Need (Minimum Qualifications)Bachelor's degree in relevant field10+ years' experience of relevant patient advocacy or related experience in the biotech/pharma industry the pharmaceutical industry or non-profit advocacy organizationProven experience in external engagement with HCPsDemonstrated knowledge of the biotech/pharma industry, including deep understanding of the Legal, Regulatory, and Compliance environment, including a strong understandingof guidelines and best practices for patient advocacy engagementHere's What You'll Bring to the Table (Preferred Qualifications)Advanced degree in relevant field a plus (MD, PharmD, PhD)Ability to champion the voice of patients and familiesAbility to work in a fast-paced environment, prioritize tasks, and successfully manage multiple projectsDemonstrated ability to effectively work independentlyA collaborative spirit, the ability to see another's point of view, empathy, and the ability to identify a path forward in ambiguous situationsStrong oral and written communication skills; ability to lead and influence without authorityAbility to successfully develop and maintain strong working relationships between both cross-functional internal colleagues and external stakeholdersA desire to make an impact as part of a high-growth, transformational company that isBold, Relentless, Curious, and CollaborativeModerna is pleased to provide you and your family with a comprehensive and innovative suite of benefits, including:Highly competitive and inclusive medical, dental and vision coverage optionsFlexible Spending Accounts for medical expenses and dependent care expensesLifestyle Spending Account funds to help you engage in personal enrichment and self-care activitiesFamily care benefits, including subsidized back-up care options and on-demand tutoringFree premium access to fitness, nutrition, and mindfulness classesExclusive preferred pricing on Peloton fitness equipmentAdoption and family-planning benefitsDedicated care coordination support for our LGBTQ+ communityGenerous paid time off, including:• Vacation, sick time and holidays• Volunteer time to participate within your community• Discretionary year-end shutdown• Paid sabbatical after 5 years; every 3 years thereafterGenerous Paid Leave offerings, including 18 weeks of 100% paid parental leave for all new parents401k match and Financial Planning toolsModerna-paid Life, LTD and STD insurance coverages, as well as voluntary benefit optionsComplimentary concierge service including home services research, travel booking, and entertainment requestsFree parking or subsidized commuter passesLocation-specific perks and extras!About ModernaSince our founding in 2010, we have aspired to build the leading mRNA technology platform, the infrastructure to reimagine how medicines are created and delivered, and a world-class team. We believe in giving our people a platform to change medicine and an opportunity to change the world. By living our mission, values, and mindsets every day, our peopleare the driving force behind our scientific progress and our culture.Together, we are creating a culture of belonging and building an organization that cares deeply for our patients, our employees, the environment, and our communities.We are proud to have been recognized as a Science Magazine Top Biopharma Employer, a Fast Company Best Workplace for Innovators, and a Great Place to Work in the U.S.As we build our company, we have always believed an in-person culture is critical to our success. Moderna champions the significant benefits of in-office collaboration by embracing a 70/30 work model. This 70% in-office structure helps to foster a culture rich in innovation, teamwork, and direct mentorship. Join us in shaping a world where every interaction is an opportunity to learn, contribute and make a meaningful impact.If you want to make a difference and join a team that is changing the future of medicine, we invite you to visit modernatx.com/careers to learn more about our current opportunities.Moderna is a smoke-free, alcohol-free and drug-free work environment.Moderna is a place where everyone can grow. If you meet the Basic Qualifications for the role and you would be excited to contribute to our mission every day, please apply!Moderna is proud to be an equal opportunity workplace and is an affirmative action employer.Moderna is committed to equal employment opportunity and non-discrimination for all employees and qualified applicants without regard to a person's race, color, sex, gender identity or expression, age, religion, national origin, ancestry or citizenship, ethnicity, disability, military or protected veteran status, genetic information, sexual orientation, marital or familial status, or any other personal characteristic protected under applicable law. Moderna is an E-Verify Employer in the United States. We also consider qualified applicants regardless of criminal histories, consistent with legal requirements.Belonging, Inclusion, and Diversity are critical to the success of our company and our impact on society. We're focused on attracting, retaining, developing, and advancing our employees and believe that by cultivating diverse experiences, backgrounds, and ideas, we can provide an environment where every employee is able to contribute their best.Moderna is committed to offering reasonable accommodations to qualified job applicants with disabilities. Any applicant requiring an accommodation in connection with the hiring process and/or to perform the essential functions of the position for which the applicant has applied should contact the Accommodations team at ****** . (EEO/AAP Employer) -